Dr Isabel Clare University positionAffiliated Assistant Professor (Research) DepartmentsInstitutesCambridge Intellectual & Developmental Disabilities Research Group Home pageResearch ThemesInterestsI work in the Cambridge Intellectual & Developmental Disabilities Research Group in the Dept. of Psychiatry and as a a senior member of the Enduring Disability and/or Disadvantage clinical theme in the NIHR's CLAHRC East of England. My research interests are focused in three main areas, all relating to people with intellectual or other neurodevelopmental disabilities: a) brain and environment interactions and contributions to everyday decision-making, particularly legally-significant decisions; b) emotional and cognitive functioning, particularly in people with Down Syndrome; c) engaging people with severe intellectual disabilities in neuroscientific investigations. Research Focus
EquipmentEcologically valid approaches Interviews Neuropsychological testing Randomised control trials Collaborators
Associated News ItemsKey publicationsClare ICH, Madden EM, Holland AJ, Farrington CJT, Whitson S, Broughton S, Lillywhite A, Jones E, Wade KA, Redley M, Wagner AP (2016), “'What vision?': experiences of Team members in a community service for adults with intellectual disabilities” Journal of Intellectual Disability Research 61(3): 197-209 Langdon PE, Murphy GH, Clare IC, Palmer EJ, Rees J (2013), “An evaluation of the EQUIP treatment programme with men who have intellectual or other developmental disabilities.” J Appl Res Intellect Disabil 26(2):167-80 Details Presland A D, Clare, I C H, Broughton S, Luke L R, Wheeler E. Fairchild G, Watson P C, Chan W Y S, Kearns, A, Ring, H (2013), “Hypothalamic-pituitary-adrenal (HPA) axis activity in adults with intellectual disabilities: A preliminary investigation, ” Journal of Intellectual Disability Research 57 (6): 539-551. Luke L, Clare IC, Ring H, Redley M, Watson P (2012), “Decision-making difficulties experienced by adults with autism spectrum conditions.” Autism 16(6):612-21 Details Publications2017Perez CM, Wagner AP, Ball SL, White SR, Clare ICH, Holland AJ, Redley M (2017), “Prognostic models for identifying adults with intellectual disabilities and mealtime support needs who are at greatest risk of respiratory infection and emergency hospitalisation” Journal of Intellectual Disability Research Vella L, Ring HA, Aitken MRF, Watson PC, Presland A, Clare ICH (2017), “Understanding self-reported difficulties in decision-making by people with autism spectrum disorders” autism 2016Ford CE, Malley D, Bateman A, Clare IC, Wagner AP, Gracey F (2016), “Selection and visualisation of outcome measures for complex post-acute acquired brain injury rehabilitation interventions” NeuroRehabilitation 39(1): 65-79 2015Perez CM, Ball SL, Wagner AP, Clare IC, Holland AJ, Redley M (2015), “The incidence of healthcare use, ill health and mortality in adults with intellectual disabilities and mealtime support needs” Journal of Intellectual Disability Research 59(7): 638-652 2014Farrington C, Clare ICH, Holland AJ, Barrett M, & Oborn E (2014), “Knowledge exchange and integrated services: experiences from an integrated community intellectual (learning) disability service for adults ” Journal of Intellectual Disability Research DOI: 10.1111/jir.12131 Gracey F, Malley D, Wagner AP, Clare, ICH (2014), “Characterising neuropsychological rehabilitation service users for service design” Social Care & Neurodisability 5, 16-28 2013Carroll C, Watson P, Spoudeas HA, Hawkins MM, Walker DA, Clare IC, Holland AJ, Ring HA (2013), “Prevalence, associations, and predictors of apathy in adult survivors of infantile (<5 years of age) posterior fossa brain tumors.” Neuro Oncol 15(4):497-505 Details Clare ICH, Redley M, Keeling A, Wagner AP, Wheeler J, Gunn M, Holland AJ (2013), “Understanding the interface between the Mental Capacity Act’s Deprivation of Liberty Safeguards (MCA-DoLS) and the Mental Health Act (MHA)” Cambridge: Department of Psychiatry, University of Cambridge Rowsell AC, Clare IC, Murphy GH (2013), “The psychological impact of abuse on men and women with severe intellectual disabilities.” J Appl Res Intellect Disabil 26(4):257-70 Details Wheeler JR, Clare IC, Holland AJ (2013), “Offending by people with intellectual disabilities in community settings: a preliminary examination of contextual factors.” J Appl Res Intellect Disabil 26(5):370-83 Details Wheeler JR, Clare ICH, Holland AJ (2013), “What can social and environmental factors tell us about the risk of offending by people with intellectual disabilities? ” Psychology, Crime & Law 10 doi: 1080/1068316X.2013.854789 2012Murphy GH, Clare ICH (2012), “Working with offenders or alleged offenders with intellectual disabilities” Clinical Psychology and People with Intellectual Disabilities (Eds.) E Emerson, L Dickson, R Gone, C Hatton, J Bromley, A Caine. Chichester: John Wiley & Sons 235-272 2011Ball SL, Panter SG, Redley M, Proctor CA, Byrne K, Clare IC, Holland AJ (2011), “The extent and nature of need for mealtime support among adults with intellectual disabilities.” J Intellect Disabil Res Details Bodsworth SM, Clare ICH, Simblett SK, Deafblind UK (2011), “Deafblindness and Mental Health: Psychological distress and unmet need among adults with dual sensory impairment” British Journal of Visual Impairment 29 (1), 6-26 Clare ICH, Upton J, Luke LR, Simpson S (2011), “Young people with intellectual (learning) disabilities involved in domestic violence: Developing a picture-based resource (Research Grant Awards 2010 Update)” BASPCAN News Autumn 2011, 5,14-15 Langdon PE, Clare ICH, Murphy GH (2011), “Moral reasoning theory and illegal behaviours by men and women with intellectual disabilities” Psychology, Crime & Law 17 (2), 101-115 Langdon PE, Murphy GH, Clare IC, Steverson T, Palmer EJ (2011), “Relationships among moral reasoning, empathy, and distorted cognitions in men with intellectual disabilities and a history of criminal offending.” Am J Intellect Dev Disabil 116(6):438-56 Details Redley M, Clare ICH, Dunn MC, Platten M, Holland AJ (2011), “Introducing the Mental Capacity Advocate (IMCA) Service and the reform of adult safeguarding procedures” British Journal of Social Work 41(6), 1058-1069 Redley M, Keeley H, Clare I, Hinds D, Luke L, Holland A (2011), “Respecting patient autonomy: understanding the impact on NHS hospital in-patients of legislation and guidance relating to patient capacity and consent.” J Health Serv Res Policy 16(1):13-20 Details 2010Dunn MC, Clare IC, Holland AJ (2010), “Living 'a life like ours': support workers' accounts of substitute decision-making in residential care homes for adults with intellectual disabilities.” J Intellect Disabil Res 54(2):144-60 Details Langdon P., Clare ICH, Murphy GH (2010), “Developing an understanding of the literature relating to the moral development of people with intellectual disabilities” Developmental Review 30, 273-293 Langdon PE, Clare IC, Murphy GH (2010), “Measuring social desirability amongst men with intellectual disabilities: the psychometric properties of the Self- and Other-Deception Questionnaire-Intellectual Disabilities.” Res Dev Disabil 31(6):1601-8 Details Langdon PE, Murphy GH, Clare IC, Palmer EJ (2010), “The psychometric properties of the Socio-Moral Reflection Measure--Short Form and the Moral Theme Inventory for men with and without intellectual disabilities.” Res Dev Disabil 31(6):1204-15 Details Redley M, Clare ICH, Luke L, Holland AJ (2010), “Mental Capacity Act (England & Wales) 2005: The emergent Independent Mental Capacity Advocate (IMCA) service” British Journal of Social Work 40 (6), 1812-1828 Woodbury-Smith, M.R., Clare, I.C.H., Holland AJ, Watson P, Bambrick M, Kearns A, Staufenberg, E (2010), “Circumscribed interests and ‘offenders’ with autism spectrum disorders: A case-control study” Journal of Forensic Psychiatry & Psychology 21, 366-377 2009Clare ICH, Woodbury-Smith MR (2009), “Autism spectrum conditions ” Forensic Neuropsychology in Practice (Eds.) S Young, M Kopelman, G Gudjonsson. Oxford: OUP 109-133 Dunn MC, Holland AJ, Clare ICH (2009), “The duty to safeguard adults from abuse, Psychiatry” Psychiatry , 8 (12), 484-486 Fistein EC, Holland AJ, Clare IC, Gunn MJ (2009), “A comparison of mental health legislation from diverse Commonwealth jurisdictions.” Int J Law Psychiatry 32(3):147-55 Details Murphy G H, Clare ICH (2009), “Intellectual disabilities and decision-making” Handbook of Forensic Neuropsychology (Eds.) S Young, M Kopelman, GH. Oxford: Oxford University Press 53-79 Murphy G, Clare ICH (2009), “Intellectual disability ” Forensic Neuropsychology in Practice (Eds.) S Young, M Kopelman, G Gudjonsson. Oxford: OUP 53-79 2008Dunn MC, Clare IC, Holland AJ (2008), “Substitute decision-making for adults with intellectual disabilities living in residential care: learning through experience.” Health Care Anal 16(1):52-64 Details Dunn MC, Clare IC, Holland AJ (2008), “To empower or to protect? Constructing the 'vulnerable adult' in English law and public policy.” Leg Stud (Soc Leg Scholars) 28(2):234-253 Details Keeley H, Redley M, Holland AJ, Clare IC (2008), “Participation in the 2005 general election by adults with intellectual disabilities.” J Intellect Disabil Res 52(Pt 3):175-81 Details Luke L, Redley M, Clare I, Holland A (2008), “Hospital clinicians' attitudes towards a statutory advocacy service for patients lacking mental capacity: implications for implementation.” J Health Serv Res Policy 13(2):73-8 Details Redley M, Platten M, Clare ICH, Holland A (2008), “The Involvement of Independent Mental Capacity Advocates (IMCAs) in Adult Protection Procedures in England: 1st April 2007 – 31st March 2008” London: Department of Health 2007Dunn MC, Clare IC, Holland AJ, Gunn MJ (2007), “Constructing and reconstructing 'best interests': An interpretative examination of substitute decision-making under the Mental Capacity Act 2005.” J Soc Welf Fam Law 29(2) Details Murphy GH, O'Callaghan AC, Clare IC (2007), “The impact of alleged abuse on behaviour in adults with severe intellectual disabilities.” J Intellect Disabil Res 51(Pt 10):741-9 Details Stansfield AJ, Holland AJ, Clare IC (2007), “The sterilisation of people with intellectual disabilities in England and Wales during the period 1988 to 1999.” J Intellect Disabil Res 51(Pt 8):569-79 Details Suto WMI, Clare ICH, Holland AJ (2007), “Financial Decision-making. Guidance for supporting financial decision-making by people with learning disabilities” Kidderminster: British Institute of Learning Disabilities ISBN: 1 904082 96 3 2006Clare ICH, Suto WMI (2006), “Financial decision-making” British Psychological Society Assessment of Capacity in Adults: Interim Guidance for Psychologists. Leicester: British Psychological Society 115-120 Murphy GH, Clare, ICH (2006), “The effect of learning disabilities on witness testimony” Witness Testimony: Psychological, Investigative, and Evidential Perspectives (Eds.) A Heaton-Armstrong, E Shepherd, G Gudjonsson, D Wolchover. Oxford: Oxford University Press. 43-60 Suto WM, Clare IC, Holland AJ, Watson PC (2006), “Understanding of basic financial concepts among adults with mild learning disabilities.” Br J Clin Psychol 45(Pt 2):261-6 Details Suto WMI, Clare ICH, Holland AJ, Watson PC (2006), “Understanding of basic financial concepts among adults with mild learning disabilities” British Journal of Clinical Psychology 45:261-266 Woodbury-Smith MR, Clare ICH, Holland AJ, Kearns A (2006), “High functioning autistic spectrum disorders, offending and other law-breaking: findings from a community sample” Journal of Forensic Psychiatry & Psychology 17, 108-120 2005Clare, ICH, Mosher S (2005), “Working with people with aggressive behaviour” Handbook of Forensic Learning Disabilities (Eds.) T Riding, C Swann, B Swann. Oxford: Radcliffe Medical Press. 75-96 Jacob R, Clare IC, Holland A, Watson PC, Maimaris C, Gunn M (2005), “Self-harm, capacity, and refusal of treatment: implications for emergency medical practice. A prospective observational study.” Emerg Med J 22(11):799-802 Details Suto WM, Clare IC, Holland AJ, Watson PC (2005), “The relationships among three factors affecting the financial decision-making abilities of adults with mild intellectual disabilities.” J Intellect Disabil Res 49(Pt 3):210-7 Details Suto WM, Clare IC, Holland AJ, Watson PC (2005), “Capacity to make financial decisions among people with mild intellectual disabilities.” J Intellect Disabil Res 49(Pt 3):199-209 Details Woodbury-Smith MR, Clare ICH, Holland AJ, Kearns A, Staufenberg E, Watson (2005), “A case-control study of offenders with high functioning autistic spectrum disorders” Journal of Forensic Psychiatry & Psychology 16, 747-763 2003Bellhouse J, Holland A, Clare ICH, Gunn M, Watson P (2003), “Capacity-based mental health legislation and its impact on clinical practice: 2) treatment in hospital” Journal of Mental Health Law July, 24-37 Bellhouse J, Holland A, Clare ICH, Gunn M, Watson P (2003), “Capacity-based mental health legislation and its impact on clinical practice: 1) admission to hospital” Journal of Mental Health Law July, 9-23 Holland A, Clare IC (2003), “The Human Genome Project: considerations for people with intellectual disabilities.” J Intellect Disabil Res 47(Pt 7):515-25 Details Murphy, GH, Clare, ICH (2003), “Adults’ capacity to make legal decisions” Handbook of Psychology in Legal Contexts 2nd Edn. (Eds.) D Carson, RHC Bull. Chichester: John Wiley & Sons 31-66 2002Fenner S, Gudjonsson H, Clare, ICH (2002), “Understanding of the current police caution (England and Wales) among suspects in police detention” , Journal of Community & Applied Social Psychology 12, 83-93 Holland T, Clare IC, Mukhopadhyay T (2002), “Prevalence of criminal offending by men and women with intellectual disability and the characteristics of offenders: implications for research and service development.” J Intellect Disabil Res 46 Suppl 1:6-20 Details Milne R, Clare ICH, Bull R (2002), “) Interrogative suggestibility among witnesses with mild intellectual disabilities: The use of an adaptation of the GSS” Journal of Applied Research in Intellectual Disabilities 15, 8-17 Suto WMI, Clare ICH, Holland, AJ (2002), “Substitute financial decision-making in England and Wales: a study of the Court of Protection” Journal of Social Welfare and Family Law 24, 37-54 2001Bellhouse J, Holland AJ, Clare ICH, Gunn MJ (2001), “Decision-making capacity in adults: its assessment in clinical practice” Advances in Psychiatric Treatment 7, 294-301 Clare ICH, Murphy GH (2001), “Special Issue on Witnesses with Learning Disabilities” British Journal of Learning Disabilities: Clare ICH, Murphy GH (Guest Eds). 29 (3), 79-80 Gunn M, Bellhouse J, Clare ICH, Holland AJ, Watson P (2001), “Families and new medical dilemmas – capacity to make decisions” Child and Family Law Quarterly 13 (4), 383-398 2000Clare ICH, McGill P (2000), “Challenging behaviour” The Blackwell Encyclopaedia of Social Work (Ed.) M Davis. Oxford: Blackwell Publishers 45-47 Gudjonsson GH, Murphy GH, Clare IC (2000), “Assessing the capacity of people with intellectual disabilities to be witnesses in court.” Psychol Med 30(2):307-14 Details Gunn MJ, Wong JG, Clare ICH, Holland AJ (2000), “Medical research and incompetent adults” Journal of Mental Health Law , February, 60-72 Wong JG, Clare, ICH, Holland AJ, Watson PC, Gunn M (2000), “The capacity of people with a ‘mental disability’ to make a health care decision” Psychological Medicine 30, 295-306 1999Gunn MJ, Wong JG, Clare IC, Holland AJ (1999), “Decision-making capacity.” Med Law Rev 7(3):269-306 Details Milne R, Clare ICH, Bull R (1999), “Using the cognitive interview with adults with mild learning disabilities” Psychology, Crime & Law 5, 81-99 Wong JG, Clare IC, Gunn MJ, Holland AJ (1999), “Capacity to make health care decisions: its importance in clinical practice.” Psychol Med 29(2):437-46 Details 1998Carson G, Clare ICH, Murphy GH (1998), “) Assessment and treatment of self-injury with a man with a profound learning disability” British Journal of Learning Disabilities 26, 51-57 Clare ICH, Gudjonsson GH, Harari PM (1998), “Understanding of the current police caution (England and Wales)” Journal of Community & Applied Social Psychology 8, 323-329 Clare, ICH, Murphy, GH (1998), “Working with offenders or alleged offenders with intellectual disabilities” Clinical Psychology and People with Intellectual Disabilities (Eds.) E. Emerson, A Caine, J Bromley, C Hatton. Chichester: John Wiley & Sons 154-176 Murphy G, Clare IC (1998), “People with learning disabilities as offenders or alleged offenders in the UK criminal justice system.” J R Soc Med 91(4):178-82 Details Pearse J, Gudjonsson GH, Clare ICH, Rutter SC (1998), “Police interviewing and psychological vulnerabilities: Predicting the likelihood of a confession” Journal of Community & Applied Social Psychology 8, 1-21 1997Carson D, Clare, ICH (1997), “Boundaries with the criminal justice and other legal systems” There Are No Easy Answers. The provision of continuing care and treatment to adults with learning disabilities who sexually abuse others (Eds.) J Churchill, H Brown, A Craft, C Horrocks. Chesterfield: ARC/ NAPSAC 53-68 Murphy GH, Clare, ICH (1997), “Consent issues” Adults with Learning Disabilities: A Practical Approach for Health Professionalsin (Eds.) J O’Hara, A Sperlinger. Chichester: John Wiley & Sons 227-228 Thompson D, Clare ICH, Brown H (1997), “Not such an ‘ordinary’ relationship: the role of women care staff in relation to men with learning disabilities who have difficult sexual behaviour” Disability & Society 12, 573-592 1996McGill PF, Clare ICH, Murphy GH (1996), “Understanding and responding to challenging behaviour: from theory to practice” Tizard Learning Disability Review 1 (1), 9-17 Murphy GH, Clare ICH (1996), “Analysis of motivation in people with mild learning disabilities (mental handicap) who set fires” Psychology, Crime & Law 2, 153-164 Murphy GH, Estien D, Clare, ICH (1996), “Services for people with mild learning disabilities and challenging behaviour: Service user views” , Journal of Applied Research in Intellectual Disabilities 9, 256-283 1995Clare ICH, Gudjonsson GH (1995), “The vulnerability of suspects with intellectual disabilities during police interviews: A review and experimental study of decision-making” Mental Handicap Research (Journal of Applied Research in Intellectual Disabilities) 8 (2), 110-128 Clements JC, Clare ICH, Ezelle LA (1995), “Real Men, Real Women, Real Lives? Gender issues in challenging behaviour” Disability & Society 10 (4), 425-435 Gudjonsson GH, Clare ICH (1995), “The relationship between confabulation and I.Q., memory, interrogative suggestibility and acquiescence” Personality & Individual Differences 19 (3), 333-338 Gudjonsson GH, Rutter SC, Clare IC (1995), “The relationship between suggestibility and anxiety among suspects detained at police stations.” Psychol Med 25(4):875-8 Details Gudjonsson GH, Rutter SC, Clare ICH (1995), “The relationship between suggestibility and anxiety among suspects detained at police stations” Psychological Medicine 25, 875-878 Murphy GH, Clare, ICH (1995), “Adults’ capacity to make decisions affecting the person” Psychology in Legal Contexts (Eds.) RHC Bull, DC Carson. Chichester: John Wiley & Sons. 97-128 1994Clare IC, Gudjonsson GH, Rutter SC, Cross P (1994), “The inter-rater reliability of the Gudjonsson Suggestibility Scale (form 2).” Br J Clin Psychol 33 ( Pt 3):357-65 Details Davison FM, Clare IC, Georgiades S, Divall J, Holland AJ (1994), “Treatment of a man with a mild learning disability who was sexually assaulted whilst in prison.” Med Sci Law 34(4):346-53 Details Gudjonsson GH, Clare ICH (1994), “The proposed new police caution (England and Wales): how easy is it to understand? ” Expert Evidence 3 (3), 109-112 1993Clare IC, Gudjonsson GH (1993), “Interrogative suggestibility, confabulation, and acquiescence in people with mild learning disabilities (mental handicap): implications for reliability during police interrogations.” Br J Clin Psychol 32 ( Pt 3):295-301 Details Clare ICH (1993), “Issues in the assessment and treatment of male sex offenders with mild learning disabilities” Sexual and Marital Therapy 8 (2), 167-180 Clare ICH, Murphy GH (1993), “M.I.E.T.S.: A service option for people with mild mental handicaps and challenging behaviour and/or psychiatric problems. III: Follow-up of the first six clients to be discharged from the service: Diverse measures of effectiveness” Mental Handicap Research 6 (1), 70-91 McCusker CG, Clare ICH, Cullen C, Reep J (1993), “Alcohol-related knowledge and attitudes in people with mild learning disabilities - Does education make a difference? ” Journal of Community and Applied Social Psychology 3, 29-40 1992Charman T, Clare ICH (1992), “) Education about the laws and social rules relating to sexual behaviour: a group for male sexual offenders with mild mental handicaps” Mental Handicap 20 (2), 74-80 Clare ICH, Gudjonsson GH (1992), “Devising and piloting an experimental version of the "Notice to Detained Persons"” Royal Commission on Criminal Justice London: HMSO Research Study No. 7 Clare ICH, Murphy GH, Cox D, Chaplin EH (1992), “Assessment and Treatment of Fire-setting: A single-case investigation using a cognitive-behavioural model” Criminal Behaviour and Mental Health 2 (3), 253-268 Ezelle L, Clare ICH, Clements JC (1992), “Gender issues in challenging behaviour” Community Living January, 21-22 Gudjonsson GH, Clare ICH,Cross P (1992), “The revised PACE ‘Notice to Detained Persons’: How easy it is to understand? ” Journal of the Forensic Science Society 32 (4), 289-299 1991Murphy GH, Clare ICH (1991), “M.I.E.T.S.: A service option for people with mild mental handicaps and challenging behaviour and/or psychiatric problems. II: psychological assessment and treatment, outcome for clients and service effectiveness” Mental Handicap Research 20 (2), 180-206 1990Clare I, Clements J (1990), “Social cognition and impaired social interaction in people with severe learning difficulties.” J Ment Defic Res 34 ( Pt 4):309-24 Details |